Research Track

HDC logoPlease see below for session descriptions within our Research Track for Health Datapalooza 2014.

The Research Track is designed by the following individuals:

Wendy Nilsen, PhD, Health Scientist Adminstrator, Office of Behavioral and Social Sciences Research, National Institutes of Health
Edward Sondik, PhD, Director, National Center for Health Statistics



Click here to access the agenda for Health Datapalooza 2014.

[agenda][day date=”2 June 2014″]Monday[/day]
[event time=”1:30pm-2:30pm”]RE01: Expanding Novel Health Data Sources for Research: Part I- The Leading New Data Sources

Moderators:
Edward Sondik, PhD, Director for National Center for Health Statistics, Centers for Disease Control and Prevention
Wendy Nilsen, PhD, Health Scientist Administrator, Office of Behavioral and Social Sciences Research, National Institutes of Health

Speakers:
Rachael Fleurence, PhD, Program Director of the CER Methods & Infrastructure Program, PCORI
Harlan Krumholz, MD, SM, Harold H. Hines, Jr. Professor of Medicine, Epidemiology & Public Health, Yale University School of Medicine
Nina Preuss, MBA, PMP, Program Manager, Health Care, Turner Consulting Group (TCG)
Matthew Bietz, PhD Assistant Project Scientist, Irvine Department of Informatics, University of California

New data sources are transforming the health research landscape with novel sources of data and extension into to new populations. This session will explore some of these new data sources including PCORI’s PCORnet; Robert Wood Johnson Foundation’s Health Data Exploration Project, Yale University’s Open Data Access (YODA) program and Neuroimaging Informatics Tools and Resources Clearing House system. These data have the potential to tailor research to specific groups and health issues, as well as to generate evidence to challenge the information undergirding current health policy. Part I of this session will focus on the opportunities these new initiatives afford, while Part II will be an interactive sessions with the session presenters.
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[event time=”3:00pm-4:00pm”]RE02: New Data Sources and the Expansion of Health Research: Part II- Talk with the Database Developers

Moderators:
Edward Sondik, PhD, Director for National Center for Health Statistics, Centers for Disease Control and Prevention
Wendy Nilsen, PhD, Health Scientist Administrator, Office of Behavioral and Social Sciences Research, National Institutes of Health

Speakers:
Sarah Greene, MPH, Senior Program Officer, CER Methods and INfrastructure Program, Patient-Centered Outcomes Research Institute (PCORI)
Harlan Krumholz, MD, SM, Harold H. Hines, Jr. Professor of Medicine, Epidemiology & Public Health, Yale University School of Medicine
Nina Preuss, MBA, PMP, Program Manager, Health Care, Turner Consulting Group (TCG)
Matthew Bietz, PhD Assistant Project Scientist, Irvine Department of Informatics, University of California

New data sources could well change the extent and focus of health research. This session will be an interactive discussion between database developers and those interested in using the novel data sources presented in Part I. The question and answer session will focus on audience questions potential opportunities of these databases, including challenges in development, analysis and access. These issues will be discussed in a session geared for interaction between those attending and the database representatives.
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[event time=”4:30pm-5:30pm”]RE03: How Research Can Enhance Design, User Interfaces, and Data Visualization User Interfaces – Meet the Expert

Speaker:
Bradford Hesse, PhD, Chief, Health Communication & Informatisc Research, National Cancer Institute

Good ideas aren’t enough if they’re realized in an ineffective user interface. Decades of research into human-computer interaction, user interface design, visualization of information, and the new social media can provide keys to using big data effectively. In this session, a panel of experts will review selected projects from Datapalooza participants in a exploration of the scientific principles that underscore effective data visualization and user interaction.

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[agenda][day date=”3 June 2014″]Tuesday[/day]
[event time=”10:20am-11:20am”]RE04: Is the Randomized Controlled Trial (RCT) Dead- A New Generation of Evidence Development

Moderator:
Kris Joshi, PhD, Executive Vice President Products, Emdeon

Speakers:
Georgia Tourassi, Director, Biomedical Sciences & Engineering Center, Oak Ridge National Laboratory
Mallikarjun Shankar, PhD, Senior Research Scientist, Oak Ridge National Laboratory
Robert Kaplan, PhD, Director, Office of Behavioral and Social Sciences Research, National Institutes of Health
Robert Temple, MD, Deputy Director for Clinical Science, US Food and Drug Adminstration

Although the RCT has been the gold standard in evaluating new treatments, processes, procedures and pharmaceuticals it has inherent limits and weaknesses. The development of new data sources including those in near real time will spur new methods of generating evidence that could well eclipse the randomized controlled trial. Panelists will debate the role of the new methods of evidence generation and discuss new directions for evaluation methods and big data analytics.
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[event time=”1:30pm-2:30pm”]RE05: What Do Public Health Officials Want From Big Data: Panel of Public Health Experts (LA, Chicago and University of Pittsburgh)

Moderator:
Chesley Richards, Deputy Director for Public Health Scientific Services, Centers for Disease Control and Prevention

Speakers:
Jay Bhatt, DO, Deputy Commissioner, Chief Innovation, Chicago Department of Public Health
Donald Burke, MD, Dean, Graduate School of Public Health, University of Pittsburgh
Alan Tomines, MD, Director, Child Health and Disability Prevention, Los Angeles County Department of Public Health

Public health agencies have been challenged by a lack of data on health status, health care, risk factors, and the behavior of the public and health care personnel, all at the regional and local level. New data technologies and sources have the potential to provide more detailed information on the health status and health care of local populations, providing information on their needs and care and their risks to health. This session will explore the needs and information innovations underway in the complex public health environment.
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[event time=”3:00pm-4:00pm”]RE06: How Research Using Big Data is Making a Difference (Or Not)

Moderator:
William Riley, PhD, Acting Director, Office of Behavioral and Social Sciences Research, National Institutes of Health

Speakers:
Tom Rindflesch, PhD, Principal Investigator, Semantic Knowledge Representation project, National Library of Medicine, National Institutes of Health
Bari Dzomba, PhD(c), MS, Project and Program Management, Research Informatics, Pennsylvania State University
Silvia Valkova, MS, Senior Manager, IMS Health Government Solutions
Joel Greenspan, MD, MPH, Senior Partner, Martin, Blanck & Associates
Ryan Kelly, Urban Information Specialist, The Providence Plan

Research using big data coupled with new data sources and new analytics is already changing health research. Examples include drawing inferences using the semantics of research publications; cardiac outcomes from data mining; and social network analysis to guide health behavior, to name a few. This session will explore the implications of some of these advances and what they portend for future research.
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